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Understanding Alagille Syndrome

Rare diseases, though individually uncommon, collectively impact millions of people worldwide. Alagille Syndrome (ALGS) is one such rare genetic disorder that affects multiple organ systems, most notably the liver, heart, and skeletal system. As we observe Rare Disease Day, which falls on February 28th, it is an opportunity to raise awareness about conditions like ALGS and highlight the importance of early diagnosis, research, and access to specialized care

What Will Happen to My Disabled Child When I Die?

One major concern for parents of children with disabilities is the uncertainty of their child's future after their death, particularly for those with high support needs. In Malaysia, there is a growing awareness of this issue, but national support mechanisms are still lacking, placing much responsibility on parents, family support networks, and civil society organizations (CSOs).

Historic Decision on PWD Rights in Malaysia

The Persons with Disabilities (PWD) or Orang Kurang Upaya (OKU) community of Malaysia applauds Justice Quay Chew Soon for his historic 16 January 2025 decision on OKU right to freedom from discrimination in employment. This decision upholds the constitutional right of all Malaysians under art. 8 (1) of the Federal Constitution, regardless of ability, to seek public sector employment.
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